Dr. Val Jones – “Tale of Two e-Patients”
November 5, 2009 by admin
In 6 minutes and 40 seconds flat, Dr. Val Jones reminded us all that there is a right way and a wrong way to be an e-patient; and that being empowered doesn’t diminish the role of the physician. See her presentation here ~ http://bit.ly/3pOgPz
Thank you Val.
Connections, Diversity, and the Start of a Community
November 5, 2009 by admin
We’ve been decompressing and gathering feedback on the first e-Patient Connections conference for a little over a week now.
And overall we think we accomplished our goal to bring together health communicators from different industries to compare and contrast the best ways to connect with empowered, digital patients. The term “connection” has a double meaning – connect with patients, but also connect with each other.
What delighted me the most was the unpredictable ways connections were manifesting themselves at the conference. I learned from dozens and dozens of speakers and attendees. Some of my favorite moments:
“e-Patient Dave deBronkart” publicly thanks Novartis for saving his life.
From patient blogger Diane Bayer, “…after my talk I sat down in the back and this fellow with a pharma company…he told me he was really amazed by my talk because he has a six year old son who has been diagnosed with autism. Then he proceeded to show me the pictures of his son…and my god…he looked just like my son! This person had come for business reasons but then we connected in a very human way. ”
Susannah Fox, from Pew Internet and Mark Bard, from Manhattan Research sharing perspectives on e-patient trends and publicly acknowledging that it’s great to be presenting together.
Several tweets and comments about what a great guy Paul Loebach is and how he offers a great face to the FDA. In the breakout sessions he offered some eye opening insights into why the FDA does and doesn’t do certain thing
Jim Currie from “N’Awlins” shouted to me as he was leaving the hotel, “Kevin, my goal is to go back and implement something that is worthy enough to get me invited back to present a case study at next year’s conference.”
The challenge of producing a 2-day conference is nothing compared with the challenge of keeping the community alive beyond the walls of the Bellevue. Hopefully we’ve sparked something that will continue to grow and continue to benefit the patients and caregivers who we ultimately serve.
- Kevin
Racing Car Driver Charlie Kimball at e-Patient Connections 2009
October 23, 2009 by admin
And there’s a good reason for it.
In 2007, Kimball was diagnosed with Type 1 diabetes and was forced to abandon his racing program mid season. Remarkably in 2008, Kimball returned to the cockpit in Formula 3 and claimed a podium finish in his first race back in the car. Kimball has continued to prove that living with diabetes does not have to restrict him in any way.
Charlie has spent the last few years racing in some of the most competitive racing categories in the world including British Formula 3, Formula 3 Euroseries and the World Series by Renault. He continues to be competitive each time he gets behind the wheel of a racing car.
Come hear his story, and how he’s sharing with others on twitter.
Special Presentation by e-Patient Dave at e-Patient Connections 2009
October 21, 2009 by admin
Diagnosed in 2007 with Stage IV, Grade 4 kidney cancer, e-Patient Dave deBronkart learned it had metastasized to both lungs, several bones (eventually snapping his leg), and his tongue, and his median survival time was 24 weeks. Using the internet in every way possible, he learned everything he could, joined an expert patient group on ACOR, built a social network on CaringBridge, and shared his online medical records with anyone who could help.
He beat the odds.
Having faced death, he asked himself what he’d do with his “free replay” in life. He became a healthcare blogger and joined the e-patient movement, where he’s one of the most outspoken advocates for patient engagement. Dave is also now a Founding Co-Chair of the Society for Participatory Medicine. Last month he launched a healthcare consulting practice, and the September issue of Health Leaders features him in the cover story, “The Patient of the Future.”
Elizabeth Cohen of CNN speaking at e-Patient Connections 2009!
October 19, 2009 by admin
Come hear Elizabeth talk about CNNs Empowered Patient and how she educates and motivates for better health – special presentation takes place on Tuesday October 27.
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