Dr. Val Jones – “Tale of Two e-Patients”
November 5, 2009 by admin · Leave a Comment
In 6 minutes and 40 seconds flat, Dr. Val Jones reminded us all that there is a right way and a wrong way to be an e-patient; and that being empowered doesn’t diminish the role of the physician. See her presentation here ~ http://bit.ly/3pOgPz
Thank you Val.
Connections, Diversity, and the Start of a Community
November 5, 2009 by admin · Leave a Comment
We’ve been decompressing and gathering feedback on the first e-Patient Connections conference for a little over a week now.
And overall we think we accomplished our goal to bring together health communicators from different industries to compare and contrast the best ways to connect with empowered, digital patients. The term “connection” has a double meaning – connect with patients, but also connect with each other.
What delighted me the most was the unpredictable ways connections were manifesting themselves at the conference. I learned from dozens and dozens of speakers and attendees. Some of my favorite moments:
“e-Patient Dave deBronkart” publicly thanks Novartis for saving his life.
From patient blogger Diane Bayer, “…after my talk I sat down in the back and this fellow with a pharma company…he told me he was really amazed by my talk because he has a six year old son who has been diagnosed with autism. Then he proceeded to show me the pictures of his son…and my god…he looked just like my son! This person had come for business reasons but then we connected in a very human way. ”
Susannah Fox, from Pew Internet and Mark Bard, from Manhattan Research sharing perspectives on e-patient trends and publicly acknowledging that it’s great to be presenting together.
Several tweets and comments about what a great guy Paul Loebach is and how he offers a great face to the FDA. In the breakout sessions he offered some eye opening insights into why the FDA does and doesn’t do certain thing
Jim Currie from “N’Awlins” shouted to me as he was leaving the hotel, “Kevin, my goal is to go back and implement something that is worthy enough to get me invited back to present a case study at next year’s conference.”
The challenge of producing a 2-day conference is nothing compared with the challenge of keeping the community alive beyond the walls of the Bellevue. Hopefully we’ve sparked something that will continue to grow and continue to benefit the patients and caregivers who we ultimately serve.
- Kevin
e-Patient Revolution
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